You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Genetic developmental and epileptic encephalopathy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Genetic developmental and epileptic encephalopathy hub →Genetic developmental and epileptic encephalopathy is a rare condition. Also known as EIDEE, Early infantile epileptic encephalopathy with suppression-bursts, Ohtahara syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Genetic developmental and epileptic encephalopathy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1934 · OMIM 300672, 308350, 609304 · ICD-10 G40.3 · GARD 0009255
Start by learning the basics from an authoritative source, find a specialist or center that sees Genetic developmental and epileptic encephalopathy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Genetic developmental and epileptic encephalopathy, filtered to your area.
Tomeko shows live, recruiting studies for Genetic developmental and epileptic encephalopathy from ClinicalTrials.gov on the hub.