You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Frontorhiny, look for clinical trials, and connect with others living with it — all in one place.
Open the full Frontorhiny hub →Frontorhiny is a rare condition. Also known as ALX3-related frontonasal dysplasia, Frontonasal dysplasia type 1, Isolated median cleft face syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Frontorhiny so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:391474 · OMIM 136760 · ICD-10 Q75.1 · GARD 0012642
Start by learning the basics from an authoritative source, find a specialist or center that sees Frontorhiny, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Frontorhiny, filtered to your area.
Tomeko shows live, recruiting studies for Frontorhiny from ClinicalTrials.gov on the hub.