You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Frontonasal dysplasia with alopecia and genital anomaly, look for clinical trials, and connect with others living with it — all in one place.
Open the full Frontonasal dysplasia with alopecia and genital anomaly hub →Frontonasal dysplasia with alopecia and genital anomaly is a rare condition. Also known as ALX4-related FNDAG, Craniofrontonasal dysplasia with alopecia and hypogonadism, Frontonasal dysplasia type 2, Frontonasal dysplasia with alopecia and genital abnomality. Tomeko brings together the specialists, research, clinical trials, treatments and community for Frontonasal dysplasia with alopecia and genital anomaly so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:228390 · OMIM 613451 · ICD-10 Q87.0 · GARD 0012641
Start by learning the basics from an authoritative source, find a specialist or center that sees Frontonasal dysplasia with alopecia and genital anomaly, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Frontonasal dysplasia with alopecia and genital anomaly, filtered to your area.
Tomeko shows live, recruiting studies for Frontonasal dysplasia with alopecia and genital anomaly from ClinicalTrials.gov on the hub.