You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Frontonasal dysplasia - severe microphthalmia - severe facial clefting syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Frontonasal dysplasia - severe microphthalmia - severe facial clefting syndrome hub →Frontonasal dysplasia - severe microphthalmia - severe facial clefting syndrome is a rare condition. Also known as ALX1-related frontonasal dysplasia, Frontonasal dysplasia type 3. Tomeko brings together the specialists, research, clinical trials, treatments and community for Frontonasal dysplasia - severe microphthalmia - severe facial clefting syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:306542 · OMIM 613456 · ICD-10 Q87.0 · GARD 0012640
Start by learning the basics from an authoritative source, find a specialist or center that sees Frontonasal dysplasia - severe microphthalmia - severe facial clefting syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
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