You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Friedreich ataxia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Friedreich ataxia hub →Friedreich ataxia is a rare condition. Also known as FA, FRDA. Tomeko brings together the specialists, research, clinical trials, treatments and community for Friedreich ataxia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:95 · OMIM 229300, 601992 · ICD-10 G11.1 · GARD 0006468
Start by learning the basics from an authoritative source, find a specialist or center that sees Friedreich ataxia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Friedreich ataxia, filtered to your area.
Tomeko shows live, recruiting studies for Friedreich ataxia from ClinicalTrials.gov on the hub.