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FRAXF syndrome

Just diagnosed with FRAXF syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees FRAXF syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full FRAXF syndrome hub →

Overview

FRAXF syndrome is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for FRAXF syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:100974 · ICD-10 Q99.2 · GARD 0019769

Find care for FRAXF syndrome

Authoritative references for FRAXF syndrome

Common questions

I was just diagnosed with FRAXF syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees FRAXF syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for FRAXF syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat FRAXF syndrome, filtered to your area.

Are there clinical trials for FRAXF syndrome?

Tomeko shows live, recruiting studies for FRAXF syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com