You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Francois syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Francois syndrome hub →Francois syndrome is a rare condition. Also known as François syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Francois syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:79149 · OMIM 221800 · ICD-10 L98.8 · GARD 0001815
Start by learning the basics from an authoritative source, find a specialist or center that sees Francois syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Francois syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Francois syndrome from ClinicalTrials.gov on the hub.