tomeko

Fontaine progeroid syndrome

Just diagnosed with Fontaine progeroid syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Fontaine progeroid syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Fontaine progeroid syndrome hub →

Overview

Fontaine progeroid syndrome is a rare condition. Also known as Petty syndrome, Petty-Laxova-Wiedemann syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Fontaine progeroid syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:2963 · OMIM 612289 · ICD-10 E34.8 · GARD 0004497

Find care for Fontaine progeroid syndrome

Authoritative references for Fontaine progeroid syndrome

Common questions

I was just diagnosed with Fontaine progeroid syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Fontaine progeroid syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Fontaine progeroid syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Fontaine progeroid syndrome, filtered to your area.

Are there clinical trials for Fontaine progeroid syndrome?

Tomeko shows live, recruiting studies for Fontaine progeroid syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com