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FLOTCH syndrome

Just diagnosed with FLOTCH syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees FLOTCH syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full FLOTCH syndrome hub →

Overview

FLOTCH syndrome is a rare condition. Also known as Leukonychia totalis-trichilemmal cysts-ciliary dystrophy syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for FLOTCH syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:2045 · ICD-10 Q84.4 · GARD 0002346

Find care for FLOTCH syndrome

Authoritative references for FLOTCH syndrome

Common questions

I was just diagnosed with FLOTCH syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees FLOTCH syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for FLOTCH syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat FLOTCH syndrome, filtered to your area.

Are there clinical trials for FLOTCH syndrome?

Tomeko shows live, recruiting studies for FLOTCH syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com