You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Filippi syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Filippi syndrome hub →Filippi syndrome is a rare condition. Also known as Type 1 syndactyly-microcephaly-intellectual disability syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Filippi syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:3255 · OMIM 272440 · ICD-10 Q87.8 · GARD 0000062
Start by learning the basics from an authoritative source, find a specialist or center that sees Filippi syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Filippi syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Filippi syndrome from ClinicalTrials.gov on the hub.