You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Febrile infection-related epilepsy syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Febrile infection-related epilepsy syndrome hub →Febrile infection-related epilepsy syndrome is a rare condition. Also known as DESC syndrome, Devastating epileptic encephalopathy in school-aged children, FIRES, Fever-induced refractory epileptic encephalopathy in school-aged children, AERRPS, Acute encephalitis with refractory repetitive partial seizures, Acute non-herpetic encephalitis with severe refractory status epilepticus. Tomeko brings together the specialists, research, clinical trials, treatments and community for Febrile infection-related epilepsy syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:163703 · ICD-10 G40.5 · GARD 0011005
Start by learning the basics from an authoritative source, find a specialist or center that sees Febrile infection-related epilepsy syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Febrile infection-related epilepsy syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Febrile infection-related epilepsy syndrome from ClinicalTrials.gov on the hub.