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Fatal familial insomnia

Just diagnosed with Fatal familial insomnia?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Fatal familial insomnia, look for clinical trials, and connect with others living with it — all in one place.

Open the full Fatal familial insomnia hub →

Overview

Fatal familial insomnia is a rare condition. Also known as FFI. Tomeko brings together the specialists, research, clinical trials, treatments and community for Fatal familial insomnia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:466 · OMIM 600072 · ICD-10 A81.8 · GARD 0006429

Find care for Fatal familial insomnia

Authoritative references for Fatal familial insomnia

Common questions

I was just diagnosed with Fatal familial insomnia — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Fatal familial insomnia, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Fatal familial insomnia?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Fatal familial insomnia, filtered to your area.

Are there clinical trials for Fatal familial insomnia?

Tomeko shows live, recruiting studies for Fatal familial insomnia from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com