You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Fanconi anemia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Fanconi anemia hub →Fanconi anemia is a rare condition. Also known as Fanconi pancytopenia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Fanconi anemia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:84 · OMIM 227645, 227646, 227650 · ICD-10 D61.0 · GARD 0006425
Start by learning the basics from an authoritative source, find a specialist or center that sees Fanconi anemia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Fanconi anemia, filtered to your area.
Tomeko shows live, recruiting studies for Fanconi anemia from ClinicalTrials.gov on the hub.