You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Familial progressive hyperpigmentation, look for clinical trials, and connect with others living with it — all in one place.
Open the full Familial progressive hyperpigmentation hub →Familial progressive hyperpigmentation is a rare condition. Also known as Melanosis diffusa congenita, Melanosis universalis hereditaria, Universal melanosis. Tomeko brings together the specialists, research, clinical trials, treatments and community for Familial progressive hyperpigmentation so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:79146 · OMIM 145250, 614233 · ICD-10 L81.4 · GARD 0016706
Start by learning the basics from an authoritative source, find a specialist or center that sees Familial progressive hyperpigmentation, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Familial progressive hyperpigmentation, filtered to your area.
Tomeko shows live, recruiting studies for Familial progressive hyperpigmentation from ClinicalTrials.gov on the hub.