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Familial porphyria cutanea tarda

Just diagnosed with Familial porphyria cutanea tarda?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Familial porphyria cutanea tarda, look for clinical trials, and connect with others living with it — all in one place.

Open the full Familial porphyria cutanea tarda hub →

Overview

Familial porphyria cutanea tarda is a rare condition. Also known as Porphyria cutanea tarda type II. Tomeko brings together the specialists, research, clinical trials, treatments and community for Familial porphyria cutanea tarda so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:443062 · OMIM 176100 · ICD-10 E80.1 · GARD 0017750

Find care for Familial porphyria cutanea tarda

Authoritative references for Familial porphyria cutanea tarda

Common questions

I was just diagnosed with Familial porphyria cutanea tarda — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Familial porphyria cutanea tarda, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Familial porphyria cutanea tarda?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Familial porphyria cutanea tarda, filtered to your area.

Are there clinical trials for Familial porphyria cutanea tarda?

Tomeko shows live, recruiting studies for Familial porphyria cutanea tarda from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com