You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Familial exudative vitreoretinopathy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Familial exudative vitreoretinopathy hub →Familial exudative vitreoretinopathy is a rare condition. Also known as Criswick-Schepens syndrome, FEVR. Tomeko brings together the specialists, research, clinical trials, treatments and community for Familial exudative vitreoretinopathy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:891 · OMIM 133780, 305390, 601813 · ICD-10 H35.0 · GARD 0001613
Start by learning the basics from an authoritative source, find a specialist or center that sees Familial exudative vitreoretinopathy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Familial exudative vitreoretinopathy, filtered to your area.
Tomeko shows live, recruiting studies for Familial exudative vitreoretinopathy from ClinicalTrials.gov on the hub.