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Familial cylindromatosis

Just diagnosed with Familial cylindromatosis?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Familial cylindromatosis, look for clinical trials, and connect with others living with it — all in one place.

Open the full Familial cylindromatosis hub →

Overview

Familial cylindromatosis is a rare condition. Also known as Turban tumor syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Familial cylindromatosis so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:211 · OMIM 132700 · ICD-10 D23.4, D23.5 · GARD 0009707

Find care for Familial cylindromatosis

Authoritative references for Familial cylindromatosis

Common questions

I was just diagnosed with Familial cylindromatosis — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Familial cylindromatosis, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Familial cylindromatosis?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Familial cylindromatosis, filtered to your area.

Are there clinical trials for Familial cylindromatosis?

Tomeko shows live, recruiting studies for Familial cylindromatosis from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com