You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Familial amyloid neuropathy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Familial amyloid neuropathy hub →Familial amyloid neuropathy is a rare condition. Also known as ATTRv amyloidosis, Familial TTR-related amyloidosis, Familial transthyretin-related amyloidosis, Hereditary TTR amyloid polyneuropathy, Hereditary TTR amyloidosis, Hereditary transthyretin amyloid polyneuropathy, hATTR. Tomeko brings together the specialists, research, clinical trials, treatments and community for Familial amyloid neuropathy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:271861 · OMIM 105210 · ICD-10 E85.1 · GARD 0021017
Start by learning the basics from an authoritative source, find a specialist or center that sees Familial amyloid neuropathy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Familial amyloid neuropathy, filtered to your area.
Tomeko shows live, recruiting studies for Familial amyloid neuropathy from ClinicalTrials.gov on the hub.