You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Familial amyloid nephropathy with urticaria AND deafness, look for clinical trials, and connect with others living with it — all in one place.
Open the full Familial amyloid nephropathy with urticaria AND deafness hub →Familial amyloid nephropathy with urticaria AND deafness is a rare condition. Also known as Neutrophilic urticaria. Tomeko brings together the specialists, research, clinical trials, treatments and community for Familial amyloid nephropathy with urticaria AND deafness so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:575 · OMIM 191900 · ICD-10 E85.0 · GARD 0008472
Start by learning the basics from an authoritative source, find a specialist or center that sees Familial amyloid nephropathy with urticaria AND deafness, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Familial amyloid nephropathy with urticaria AND deafness, filtered to your area.
Tomeko shows live, recruiting studies for Familial amyloid nephropathy with urticaria AND deafness from ClinicalTrials.gov on the hub.