You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Facioscapulohumeral muscular dystrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Facioscapulohumeral muscular dystrophy hub →Facioscapulohumeral muscular dystrophy is a rare condition. Also known as FSH dystrophy, FSHD, Facioscapulohumeral muscular dystrophy, Facioscapulohumeral myopathy, Landouzy-Dejerine dystrophy, Landouzy-Dejerine myopathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Facioscapulohumeral muscular dystrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:269 · OMIM 158900, 158901, 600416 · ICD-10 G71.0 · GARD 0009941
Start by learning the basics from an authoritative source, find a specialist or center that sees Facioscapulohumeral muscular dystrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Facioscapulohumeral muscular dystrophy, filtered to your area.
Tomeko shows live, recruiting studies for Facioscapulohumeral muscular dystrophy from ClinicalTrials.gov on the hub.