You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Facial hemiatrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Facial hemiatrophy hub →Facial hemiatrophy is a rare condition. Also known as Hemifacial atrophy, PHA, Parry-Romberg syndrome, Progressive facial hemiatrophy, Romberg syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Facial hemiatrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1214 · OMIM 141300 · ICD-10 G51.8 · GARD 0007338
Start by learning the basics from an authoritative source, find a specialist or center that sees Facial hemiatrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Facial hemiatrophy, filtered to your area.
Tomeko shows live, recruiting studies for Facial hemiatrophy from ClinicalTrials.gov on the hub.