You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Extramammary Paget disease, look for clinical trials, and connect with others living with it — all in one place.
Open the full Extramammary Paget disease hub →Extramammary Paget disease is a rare condition. Tomeko brings together the specialists, research, clinical trials, treatments and community for Extramammary Paget disease so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2800 · OMIM 167300 · ICD-10 C44.5 · GARD 0004192
Start by learning the basics from an authoritative source, find a specialist or center that sees Extramammary Paget disease, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Extramammary Paget disease, filtered to your area.
Tomeko shows live, recruiting studies for Extramammary Paget disease from ClinicalTrials.gov on the hub.