You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Exstrophy-epispadias complex, look for clinical trials, and connect with others living with it — all in one place.
Open the full Exstrophy-epispadias complex hub →Exstrophy-epispadias complex is a rare condition. Also known as BEEC, Bladder exstrophy-epispadias-cloacal extrophy complex, EEC. Tomeko brings together the specialists, research, clinical trials, treatments and community for Exstrophy-epispadias complex so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:322 · OMIM 258040, 600057 · ICD-10 Q64.1 · GARD 0002207
Start by learning the basics from an authoritative source, find a specialist or center that sees Exstrophy-epispadias complex, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Exstrophy-epispadias complex, filtered to your area.
Tomeko shows live, recruiting studies for Exstrophy-epispadias complex from ClinicalTrials.gov on the hub.