You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Epidermolysis bullosa simplex 1C, localized, look for clinical trials, and connect with others living with it — all in one place.
Open the full Epidermolysis bullosa simplex 1C, localized hub →Epidermolysis bullosa simplex 1C, localized is a rare condition. Also known as EBS-loc, Epidermolysis bullosa simplex of palms and soles, Epidermolysis bullosa simplex, Weber-Cockayne type, Localized EBS. Tomeko brings together the specialists, research, clinical trials, treatments and community for Epidermolysis bullosa simplex 1C, localized so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:79400 · OMIM 131800, 619594 · ICD-10 Q81.0 · GARD 0002146
Start by learning the basics from an authoritative source, find a specialist or center that sees Epidermolysis bullosa simplex 1C, localized, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Epidermolysis bullosa simplex 1C, localized, filtered to your area.
Tomeko shows live, recruiting studies for Epidermolysis bullosa simplex 1C, localized from ClinicalTrials.gov on the hub.