You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Epidermolysis bullosa pruriginosa, look for clinical trials, and connect with others living with it — all in one place.
Open the full Epidermolysis bullosa pruriginosa hub →Epidermolysis bullosa pruriginosa is a rare condition. Also known as DEB pruriginosa, DEB-Pr, Pruriginous dystrophic epidermolysis bullosa. Tomeko brings together the specialists, research, clinical trials, treatments and community for Epidermolysis bullosa pruriginosa so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:89843 · OMIM 604129 · ICD-10 Q81.2 · GARD 0016779
Start by learning the basics from an authoritative source, find a specialist or center that sees Epidermolysis bullosa pruriginosa, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Epidermolysis bullosa pruriginosa, filtered to your area.
Tomeko shows live, recruiting studies for Epidermolysis bullosa pruriginosa from ClinicalTrials.gov on the hub.