You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Ehlers-Danlos syndrome, musculocontractural type, look for clinical trials, and connect with others living with it — all in one place.
Open the full Ehlers-Danlos syndrome, musculocontractural type hub →Ehlers-Danlos syndrome, musculocontractural type is a rare condition. Also known as Adducted thumb-clubfoot syndrome, Distal arthrogryposis with peculiar facies and hydronephrosis, Dündar syndrome, Ehlers-Danlos syndrome, Kosho type, Musculocontractural EDS, mcEDS. Tomeko brings together the specialists, research, clinical trials, treatments and community for Ehlers-Danlos syndrome, musculocontractural type so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2953 · OMIM 601776, 615539 · ICD-10 Q79.6 · GARD 0008486
Start by learning the basics from an authoritative source, find a specialist or center that sees Ehlers-Danlos syndrome, musculocontractural type, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Ehlers-Danlos syndrome, musculocontractural type, filtered to your area.
Tomeko shows live, recruiting studies for Ehlers-Danlos syndrome, musculocontractural type from ClinicalTrials.gov on the hub.