You are not alone. Here is where to start: learn the basics, find a specialist or center that sees EDICT syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full EDICT syndrome hub →EDICT syndrome is a rare condition. Also known as Autosomal dominant keratoconus with early-onset anterior polar cataracts, Endothelial dystrophy-iris hypoplasia-congenital cataract-stromal thinning syndrome, Familial keratoconus with cataract, KTCNCT. Tomeko brings together the specialists, research, clinical trials, treatments and community for EDICT syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:293936 · OMIM 614303 · ICD-10 H18.6 · GARD 0017349
Start by learning the basics from an authoritative source, find a specialist or center that sees EDICT syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat EDICT syndrome, filtered to your area.
Tomeko shows live, recruiting studies for EDICT syndrome from ClinicalTrials.gov on the hub.