You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Ectrodactyly, look for clinical trials, and connect with others living with it — all in one place.
Open the full Ectrodactyly hub →Ectrodactyly is a rare condition. Also known as Ectrodactyly, SHFM, Split hand foot malformation. Tomeko brings together the specialists, research, clinical trials, treatments and community for Ectrodactyly so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:2440 · OMIM 183600, 225300, 246560 · ICD-10 Q74.8 · GARD 0006319
Start by learning the basics from an authoritative source, find a specialist or center that sees Ectrodactyly, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Ectrodactyly, filtered to your area.
Tomeko shows live, recruiting studies for Ectrodactyly from ClinicalTrials.gov on the hub.