You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Early-onset generalized limb-onset dystonia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Early-onset generalized limb-onset dystonia hub →Early-onset generalized limb-onset dystonia is a rare condition. Also known as Dystonia musculorum deformans, EOTD, Early-onset generalized torsion dystonia, Early-onset isolated dystonia, Early-onset primary dystonia, Early-onset torsion dystonia, Idiopathic torsion dystonia, Oppenheim dystonia. Tomeko brings together the specialists, research, clinical trials, treatments and community for Early-onset generalized limb-onset dystonia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:256 · OMIM 128100, 602554, 619687 · ICD-10 G24.1 · GARD 0002027
Start by learning the basics from an authoritative source, find a specialist or center that sees Early-onset generalized limb-onset dystonia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Early-onset generalized limb-onset dystonia, filtered to your area.
Tomeko shows live, recruiting studies for Early-onset generalized limb-onset dystonia from ClinicalTrials.gov on the hub.