You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Dystonia 16, look for clinical trials, and connect with others living with it — all in one place.
Open the full Dystonia 16 hub →Dystonia 16 is a rare condition. Also known as DYT16, Early-onset dystonia parkinsonism. Tomeko brings together the specialists, research, clinical trials, treatments and community for Dystonia 16 so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:210571 · OMIM 612067 · ICD-10 G24.1 · GARD 0010539
Start by learning the basics from an authoritative source, find a specialist or center that sees Dystonia 16, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Dystonia 16, filtered to your area.
Tomeko shows live, recruiting studies for Dystonia 16 from ClinicalTrials.gov on the hub.