You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Dysequilibrium syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Dysequilibrium syndrome hub →Dysequilibrium syndrome is a rare condition. Also known as CAMRQ syndrome, Cerebellar ataxia-intellectual disability-dysequilibrium syndrome, Non-progressive cerebellar ataxia-intellectual disability syndrome, UTS, Uner Tan syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Dysequilibrium syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1766 · OMIM 224050, 610185, 613227 · ICD-10 G11.8 · GARD 0001998
Start by learning the basics from an authoritative source, find a specialist or center that sees Dysequilibrium syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Dysequilibrium syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Dysequilibrium syndrome from ClinicalTrials.gov on the hub.