You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Dural sinus malformation, look for clinical trials, and connect with others living with it — all in one place.
Open the full Dural sinus malformation hub →Dural sinus malformation is a rare condition. Also known as Cranial dural arteriovenous fistula, Dural sinus malformation with arteriovenous fistulae. Tomeko brings together the specialists, research, clinical trials, treatments and community for Dural sinus malformation so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:97339 · ICD-10 Q28.3 · GARD 0019368
Start by learning the basics from an authoritative source, find a specialist or center that sees Dural sinus malformation, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Dural sinus malformation, filtered to your area.
Tomeko shows live, recruiting studies for Dural sinus malformation from ClinicalTrials.gov on the hub.