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Duchenne muscular dystrophy

Just diagnosed with Duchenne muscular dystrophy?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Duchenne muscular dystrophy, look for clinical trials, and connect with others living with it — all in one place.

Open the full Duchenne muscular dystrophy hub →

Overview

Duchenne muscular dystrophy is a rare condition. Also known as DMD, Severe dystrophinopathy, Duchenne type. Tomeko brings together the specialists, research, clinical trials, treatments and community for Duchenne muscular dystrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:98896 · OMIM 310200 · ICD-10 G71.0 · GARD 0006291

Find care for Duchenne muscular dystrophy

Patient organizations for Duchenne muscular dystrophy

Authoritative references for Duchenne muscular dystrophy

Common questions

I was just diagnosed with Duchenne muscular dystrophy — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Duchenne muscular dystrophy, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Duchenne muscular dystrophy?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Duchenne muscular dystrophy, filtered to your area.

Are there clinical trials for Duchenne muscular dystrophy?

Tomeko shows live, recruiting studies for Duchenne muscular dystrophy from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com