You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Drash syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Drash syndrome hub →Drash syndrome is a rare condition. Also known as Drash syndrome, Wilms tumor-DSD syndrome, Wilms tumor-disorder of sex development syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Drash syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:220 · OMIM 194080 · ICD-10 N04.1 · GARD 0005576
Start by learning the basics from an authoritative source, find a specialist or center that sees Drash syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Drash syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Drash syndrome from ClinicalTrials.gov on the hub.