You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Doyne honeycomb retinal dystrophy, look for clinical trials, and connect with others living with it — all in one place.
Open the full Doyne honeycomb retinal dystrophy hub →Doyne honeycomb retinal dystrophy is a rare condition. Also known as ADD, DHRD, Dominant drusen, Dominant radial drusen, Doyne honeycomb retinal dystrophy, Familial drusen, Malattia leventinese. Tomeko brings together the specialists, research, clinical trials, treatments and community for Doyne honeycomb retinal dystrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:75376 · OMIM 126600, 126700 · ICD-10 H35.5 · GARD 0001912
Start by learning the basics from an authoritative source, find a specialist or center that sees Doyne honeycomb retinal dystrophy, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Doyne honeycomb retinal dystrophy, filtered to your area.
Tomeko shows live, recruiting studies for Doyne honeycomb retinal dystrophy from ClinicalTrials.gov on the hub.