You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Distal trisomy 6p, look for clinical trials, and connect with others living with it — all in one place.
Open the full Distal trisomy 6p hub →Distal trisomy 6p is a rare condition. Also known as Distal trisomy 6p, Telomeric duplication 6p, Trisomy 6pter. Tomeko brings together the specialists, research, clinical trials, treatments and community for Distal trisomy 6p so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1745 · ICD-10 Q92.3 · GARD 0018745
Start by learning the basics from an authoritative source, find a specialist or center that sees Distal trisomy 6p, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Distal trisomy 6p, filtered to your area.
Tomeko shows live, recruiting studies for Distal trisomy 6p from ClinicalTrials.gov on the hub.