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Distal spinal muscular atrophy

Just diagnosed with Distal spinal muscular atrophy?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Distal spinal muscular atrophy, look for clinical trials, and connect with others living with it — all in one place.

Open the full Distal spinal muscular atrophy hub →

Overview

Distal spinal muscular atrophy is a rare condition. Also known as Distal spinal muscular atrophy, dHMN, dSMA. Tomeko brings together the specialists, research, clinical trials, treatments and community for Distal spinal muscular atrophy so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:53739 · GARD 0012683

Find care for Distal spinal muscular atrophy

Authoritative references for Distal spinal muscular atrophy

Common questions

I was just diagnosed with Distal spinal muscular atrophy — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Distal spinal muscular atrophy, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Distal spinal muscular atrophy?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Distal spinal muscular atrophy, filtered to your area.

Are there clinical trials for Distal spinal muscular atrophy?

Tomeko shows live, recruiting studies for Distal spinal muscular atrophy from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com