You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Distal myopathy with posterior leg and anterior hand involvement, look for clinical trials, and connect with others living with it — all in one place.
Open the full Distal myopathy with posterior leg and anterior hand involvement hub →Distal myopathy with posterior leg and anterior hand involvement is a rare condition. Also known as Distal ABD-filaminopathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Distal myopathy with posterior leg and anterior hand involvement so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:63273 · OMIM 614065 · ICD-10 G71.0 · GARD 0016666
Start by learning the basics from an authoritative source, find a specialist or center that sees Distal myopathy with posterior leg and anterior hand involvement, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Distal myopathy with posterior leg and anterior hand involvement, filtered to your area.
Tomeko shows live, recruiting studies for Distal myopathy with posterior leg and anterior hand involvement from ClinicalTrials.gov on the hub.