You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Distal monosomy 1q, look for clinical trials, and connect with others living with it — all in one place.
Open the full Distal monosomy 1q hub →Distal monosomy 1q is a rare condition. Also known as Monosomy 1qter, Telomeric deletion 1q, Distal monosomy 1q. Tomeko brings together the specialists, research, clinical trials, treatments and community for Distal monosomy 1q so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:36367 · OMIM 612337 · ICD-10 Q93.5 · GARD 0016640
Start by learning the basics from an authoritative source, find a specialist or center that sees Distal monosomy 1q, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Distal monosomy 1q, filtered to your area.
Tomeko shows live, recruiting studies for Distal monosomy 1q from ClinicalTrials.gov on the hub.