You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Distal monosomy 19p13.3, look for clinical trials, and connect with others living with it — all in one place.
Open the full Distal monosomy 19p13.3 hub →Distal monosomy 19p13.3 is a rare condition. Also known as Distal deletion 19p13.3, Distal monosomy 19p13.3, Telomeric deletion 19p. Tomeko brings together the specialists, research, clinical trials, treatments and community for Distal monosomy 19p13.3 so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:96129 · ICD-10 Q93.5 · GARD 0019326
Start by learning the basics from an authoritative source, find a specialist or center that sees Distal monosomy 19p13.3, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Distal monosomy 19p13.3, filtered to your area.
Tomeko shows live, recruiting studies for Distal monosomy 19p13.3 from ClinicalTrials.gov on the hub.