You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Distal monosomy 13q, look for clinical trials, and connect with others living with it — all in one place.
Open the full Distal monosomy 13q hub →Distal monosomy 13q is a rare condition. Also known as 13q32 deletion, Deletion 13q32, Distal monosomy 13q, Monosomy 13q32, Telomeric deletion 13q. Tomeko brings together the specialists, research, clinical trials, treatments and community for Distal monosomy 13q so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1590 · OMIM 602553 · ICD-10 Q93.5 · GARD 0016571
Start by learning the basics from an authoritative source, find a specialist or center that sees Distal monosomy 13q, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Distal monosomy 13q, filtered to your area.
Tomeko shows live, recruiting studies for Distal monosomy 13q from ClinicalTrials.gov on the hub.