You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Distal arthrogryposis type 5D, look for clinical trials, and connect with others living with it — all in one place.
Open the full Distal arthrogryposis type 5D hub →Distal arthrogryposis type 5D is a rare condition. Also known as Distal arthrogryposis type 5 without ophthalmoplegia, DA5D, Distal arthrogryposis type 5 without ophthalmoparesis. Tomeko brings together the specialists, research, clinical trials, treatments and community for Distal arthrogryposis type 5D so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:329457 · OMIM 615065 · ICD-10 Q68.8 · GARD 0013059
Start by learning the basics from an authoritative source, find a specialist or center that sees Distal arthrogryposis type 5D, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Distal arthrogryposis type 5D, filtered to your area.
Tomeko shows live, recruiting studies for Distal arthrogryposis type 5D from ClinicalTrials.gov on the hub.