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Distal 10q deletion syndrome

Just diagnosed with Distal 10q deletion syndrome?

You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Distal 10q deletion syndrome, look for clinical trials, and connect with others living with it — all in one place.

Open the full Distal 10q deletion syndrome hub →

Overview

Distal 10q deletion syndrome is a rare condition. Also known as Deletion 10qter, Distal monosomy 10q, Monosomy 10qter, Telomeric deletion 10q. Tomeko brings together the specialists, research, clinical trials, treatments and community for Distal 10q deletion syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.

Identifiers: ORPHA:96148 · OMIM 609625 · ICD-10 Q93.5 · GARD 0003711

Find care for Distal 10q deletion syndrome

Authoritative references for Distal 10q deletion syndrome

Common questions

I was just diagnosed with Distal 10q deletion syndrome — what should I do first?

Start by learning the basics from an authoritative source, find a specialist or center that sees Distal 10q deletion syndrome, and connect with a patient organization. Tomeko brings these together on one hub.

Where can I find a specialist for Distal 10q deletion syndrome?

Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Distal 10q deletion syndrome, filtered to your area.

Are there clinical trials for Distal 10q deletion syndrome?

Tomeko shows live, recruiting studies for Distal 10q deletion syndrome from ClinicalTrials.gov on the hub.

Informational only — not medical advice. Always consult a qualified clinician. Provider and reference data from public sources (NIH GARD, Orphanet, OMIM, HPO, MONDO, ClinicalTrials.gov, CMS NPPES). © Tomeko · tomekohealth.com