You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Diencephalic syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full Diencephalic syndrome hub →Diencephalic syndrome is a rare condition. Also known as Diencephalic cachexia, Diencephalic syndrome of childhood, Diencephalic syndrome of emaciation, Russell diencephalic cachexia, Russell syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Diencephalic syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1672 · ICD-10 C72.8 · GARD 0006276
Start by learning the basics from an authoritative source, find a specialist or center that sees Diencephalic syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Diencephalic syndrome, filtered to your area.
Tomeko shows live, recruiting studies for Diencephalic syndrome from ClinicalTrials.gov on the hub.