You are not alone. Here is where to start: learn the basics, find a specialist or center that sees DICER1-related tumor predisposition, look for clinical trials, and connect with others living with it — all in one place.
Open the full DICER1-related tumor predisposition hub →DICER1-related tumor predisposition is a rare condition. Also known as PPB familial tumor and dysplasia syndrome, PPBFTDS, Pleuropulmonary blastoma familial tumor and dysplasia syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for DICER1-related tumor predisposition so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:284343 · OMIM 601200 · ICD-10 C34.8 · GARD 0010734
Start by learning the basics from an authoritative source, find a specialist or center that sees DICER1-related tumor predisposition, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat DICER1-related tumor predisposition, filtered to your area.
Tomeko shows live, recruiting studies for DICER1-related tumor predisposition from ClinicalTrials.gov on the hub.