You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Diastematomyelia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Diastematomyelia hub →Diastematomyelia is a rare condition. Also known as Diastematomyelia, SCM type 1, SCM type I, Split cord malformation type 1. Tomeko brings together the specialists, research, clinical trials, treatments and community for Diastematomyelia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:1671 · OMIM 222500 · ICD-10 Q06.2 · GARD 0001851
Start by learning the basics from an authoritative source, find a specialist or center that sees Diastematomyelia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Diastematomyelia, filtered to your area.
Tomeko shows live, recruiting studies for Diastematomyelia from ClinicalTrials.gov on the hub.