You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Diamond-Blackfan anemia, look for clinical trials, and connect with others living with it — all in one place.
Open the full Diamond-Blackfan anemia hub →Diamond-Blackfan anemia is a rare condition. Also known as DBA, Congenital PRCA, Congenital pure red cell aplasia, Diamond-Blackfan anemia syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for Diamond-Blackfan anemia so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:124 · OMIM 105650, 300946, 606129 · ICD-10 D61.0 · GARD 0006274
Start by learning the basics from an authoritative source, find a specialist or center that sees Diamond-Blackfan anemia, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Diamond-Blackfan anemia, filtered to your area.
Tomeko shows live, recruiting studies for Diamond-Blackfan anemia from ClinicalTrials.gov on the hub.