You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Desmoid tumor, look for clinical trials, and connect with others living with it — all in one place.
Open the full Desmoid tumor hub →Desmoid tumor is a rare condition. Also known as Aggressive fibromatosis, Desmoid type fibromatosis. Tomeko brings together the specialists, research, clinical trials, treatments and community for Desmoid tumor so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:873 · OMIM 135290 · ICD-10 D48.1 · GARD 0001820
Start by learning the basics from an authoritative source, find a specialist or center that sees Desmoid tumor, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Desmoid tumor, filtered to your area.
Tomeko shows live, recruiting studies for Desmoid tumor from ClinicalTrials.gov on the hub.