You are not alone. Here is where to start: learn the basics, find a specialist or center that sees Desmin-related myopathy with Mallory body-like inclusions, look for clinical trials, and connect with others living with it — all in one place.
Open the full Desmin-related myopathy with Mallory body-like inclusions hub →Desmin-related myopathy with Mallory body-like inclusions is a rare condition. Also known as Early-onset desmin-related myopathy. Tomeko brings together the specialists, research, clinical trials, treatments and community for Desmin-related myopathy with Mallory body-like inclusions so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:84132 · OMIM 602771 · ICD-10 G71.8 · GARD 0016732
Start by learning the basics from an authoritative source, find a specialist or center that sees Desmin-related myopathy with Mallory body-like inclusions, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat Desmin-related myopathy with Mallory body-like inclusions, filtered to your area.
Tomeko shows live, recruiting studies for Desmin-related myopathy with Mallory body-like inclusions from ClinicalTrials.gov on the hub.