You are not alone. Here is where to start: learn the basics, find a specialist or center that sees DEND syndrome, look for clinical trials, and connect with others living with it — all in one place.
Open the full DEND syndrome hub →DEND syndrome is a rare condition. Also known as Developmental delay-epilepsy-neonatal diabetes syndrome. Tomeko brings together the specialists, research, clinical trials, treatments and community for DEND syndrome so you can go from overwhelmed to oriented. For authoritative medical detail, see the reference sources below.
Identifiers: ORPHA:79134 · OMIM 606176 · ICD-10 P70.2 · GARD 0016701
Start by learning the basics from an authoritative source, find a specialist or center that sees DEND syndrome, and connect with a patient organization. Tomeko brings these together on one hub.
Use Tomeko's specialist and Centers-of-Excellence directories to find clinicians who treat DEND syndrome, filtered to your area.
Tomeko shows live, recruiting studies for DEND syndrome from ClinicalTrials.gov on the hub.